The Waiting List

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The demand for supports for Tennesseans with intellectual disabilities is greater than any time in the past. Over 7,000 adults and children with intellectual disabilities are currently on the waiting list for home and community based waiver services (HCBS) through the State of Tennessee, Department of Intellectual and Developmental Disabilities (DIDD). Families struggle to support their loved one(s) with an intellectual disability and maintain their household economically, physically and emotionally. Click HERE for The Arc Tennessee’s Issue Paper on the DIDD Waiting List.

To read recent articles in the Tennessean click HERE and HERE.

The Arc Tennessee’s Waiting List Campaign, “It’s Not Too Late…End the Wait” officially launched back in August, 2012.*

This year, The Arc Tennessee continues its waiting list campaign with the introduction of legislation to address eligible people on the DIDD waiting list for home and community based waiver services with primary caregivers aged 75 and older. This legislation, if passed, would require DIDD to offer the Self-determination Waiver to these individuals.

To read the legislation, click HERE.

To view talking points about this legislation, click HERE.

Please contact your legislators and share your support of this legislation.

Links to important Waiting List information:

The Fulfill the Promise website has position statements developed by the Disability Policy Alliance. You can access them HERE.

It is also important that families share their stories. The more aware people are of the critical need for supports and services for people with intellectual disabilities, the better the chance of funds being allocated to bring people off the waiting list. “Kindred Stories” is an on-line database where people can tell their stories about disability and others can read their stories. Stories and successes are shared with legislators and others. To tell your story click HERE. The 2013 Edition of Kindred Stories – a collaborative project of Vanderbilt Kennedy Center and The Arc Tennessee that focuses on families with individuals on the waiting list is available in Acrobat Reader HERE.

*In 2012 The Arc staff traveled to fifteen cities to bring together families and others impacted by the waiting list. Meetings provided individuals with an update on the status of the DIDD waiting list; provided tools for families to share their stories with legislators, government officials and others; and offered possible resources for services and activities while waiting for HCBS.